Updated

25/06/2009

( EU Council Recommendation )

Climb National Information

Centre for Metabolic Diseases

 

 

Supporting families, changing lives

We are committed to fighting metabolic diseases through research, awareness and support.  We are the UK's only dedicated organisation to provide information and support on all metabolic diseases to children, adults, families, carers and professionals. 

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Recycle Awareness Week 22 - 28 June 2009

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Disclaimer

 

 

For diagnosed and undiagnosed families with metabolic disease, we can supply long term support for all issues to do with caring, diagnosis, treatment, information, benefit advice, small grants, family issues, bereavement and beyond.

We can help you with up to date information on over 700 Inherited Metabolic Diseases  and supply supportive information for your care team to help them support you.

 

 May 09

 Batten Disease Study of Family Needs (Executive

 Summary) - pdf format

View

 May 09

 PHG Foundation Report - Tay Sachs Disease carrier screening in the Ashkenazi Jewish population - pdf format

View
 May 09 SPRU University of York - Evidence on effectiveness of Behavioural Interventions to Help Parents Manage Sleep Problems in Young Disabled Children View
 May 09 SPRU University of York -The Effectiveness of Behavioural Interventions Which Involve Parents in the Management of Behaviour Problems Among Disabled Children: View
25 June EU Council Recommendations on Action in the Field of Rare Diseases (PDF Format) View
 June 09 Recycle your old Mobile Phone for Climb View
 21 June Horse and Dog Show (supporting Chantelle's Birthday Bash)  
  06 Sep

  Adidas Womens 5k Challenge

  On-line registration open late Feb 2009

View

 

 

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