Climb Providing Training Materials to Midwives, Health Visitors and Screening Co-ordinators
Climb is pleased to have been invited to give a presentation and provide training materials to Midwives, Health Visitors and Screening Co-ordinators in London. We will be focusing on the new conditions that have recently been added to the newborn screening programme and answering any questions from delegates. We look forward to this fantastic opportunity to raise important awareness to this group of professionals.
Personal Independence Payment (PIP)
Personal Independence Payment (PIP) is a new benefit, replacing Disability Living Allowance (DLA) for eligible working age people nationally from June 2013. The Social Policy Research Unit (SPRU York) undertook research into each stage of the PIP claiming process for the Department for Work and Pensions, including requests for reconsideration and the special processes for people with terminal health conditions.
The summary is available here. The full report and summary can be downloaded from the SPRU website here.
After over 5 years of the expanded newborn screening project and a National Screening Committee (UKNSC) public consultation, it has finally been announced that another 4 metabolic disorders will be added to the list of disorders that newborn babies are screened for. Climb was a member of the management group for this project from the begining and we are justifiably proud to have been involved in such an important project.
The disorders to be added are Maple Syrup Urine Disease (MSUD), Glutaric Aciduria Type1 (GA1), Homocystinuria (Pyridoxine unresponsive) and Isovaleric Acidemia (IVA). It is expected that screening will be offered from early 2015. Wales, Northern ireland and Scotland have expressed their interest in the UKNSC recommendation but will need to make independent policy decisions.
Regretfully the recommendation by Climb and many other organisations to include Long Chain 3 Hydroxyacyl CoA Dehydrogenase Deficiency (LCHADD) was not supported.