As we celebrate 35 years of supporting those affected by Inherited Metabolic Disorders and reflect on the achievements of the charity, we asked our founders, Lesley and Peter Greene, to put into words what Climb means to them today:
(Sometimes we must take a leap into the dark to reach the light)
Who knew when our first child Jen was born in 1978 she had a “rare inherited, incurable, metabolic disease” and our response would be to set up a charity encompassing all metabolic diseases in November 1981?
Who knew, as we stood in the rain outside St Mary’s Nantwich with our tombola stall that the first £72 raised would amount to several million pounds 35 years later?
Who knew that the shoe box and our back bedroom would become Climb Building in 2016 and the founding work of our dedicated volunteers would be carried forward, transformed and sustained by the skilled staff who work there today?
Who knew our support would stretch from Cheshire across the globe with the world wide web, internet, Facebook and Twitter?
Our mission, after receiving such a stark diagnosis, was to support families receiving similar news with accurate and appropriate information (knowledge is power), signposting to the best experts, being a listening ear 24/7, raising awareness amongst the medical, healthcare, social care and teaching professions and funding research for treatments and ultimately cures. If this sounds familiar, it is because although the delivery has been transformed through the evolution of the digital age, the objectives are little changed.
We are so grateful to our volunteer trustees, countless supporters and fundraisers in addition to our dedicated staff who have kept this mission alive. We are truly thankful for the skilled clinicians and researchers who have given hope where there was none before.
Our only wish is to continue supporting vital research; keep helping those in need; advocate boldly for quality medicines and access to them; collaborate energetically with our rare disease partners to share best practice and above all, to sustain and continually improve what we do in order to keep hope and Jen’s legacy alive.