Our beautiful little princess was born October 16th
2007. She was born suddenly and unexpectedly at home, needing to be
delivered by her daddy whilst the paramedics were still on there way. We
knew she was going to be special from that moment on.
She was born
happy, healthy and had a beauty that no words could give justice. As she
grew and as we saw her first smiles and giggles - we couldn’t wait to
see more of her firsts. She loved being cuddled and talked to (and tried
to talk back in her own special way), she loved to stare at lights and
watch the washing machine, but best of all she loved her bath time. She
loved to watch, and would sit as if taking the world in. I always
wondered what she was thinking as her look was so wise!
Her first
Christmas was one that we will never forget. She smiled constantly and
loved helping daddy unwrap the presents - she found the noise hysterical
and seemed to love every minute. We were so proud of our girl.
We sit here and
think of how to describe her but we find it hard to explain just how
perfect she was. Jamie-Rae had the sweetest smell, a little button nose,
rosebud lips that when she smiled would make our world move, and the
most amazingly big grey eyes.
We had an amazing
3 months with her and had no idea there was anything wrong.
On January the 10th
Jamie-Rae fell ill, and she was admitted to HDU at the Royal Berkshire
Hospital., where she continued to baffle doctors. 3 days later she was
put on a life support machine and was transferred to PICU at the John
Radcliff hospital, where she fought so hard and had a strength that
amazed us all. Jamie-Rae was finally diagnosed with LCHAD (Long-chain
3-Hydroxyacyl-coenzyme A Dehydrogenase deficiency) and was put on the
medication and feed that could possibly help her. On her 8th
day in hospital her condition had continued to deteriorate, and it was
thought her best chance was to take her to GOSH.
Our baby girl was
too tired and her heart was just not strong enough to make the journey.
Jamie-Rae fell asleep on the way there; she was 3months and 2days old.
Jamie-Rae had a
rare love to give and managed to capture the hearts of everyone who met
her. She has taught us all so much, and many lessons are yet
undiscovered. She continues to astound us. This is why we want to
start the Jamie-Rae galaxy tribute fund. We want to help raise as much
awareness and funding to help others like us, and hopefully somewhere
someday we can prevent such a precious loss happening again.
In memory of
Jamie-Rae Olivia, so sweet, precious and amazing, our little angel, she
is and always will be our perfect little princess
In our hearts
forever, Mummy and Daddy xxxx
