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The National Information Centre for Metabolic Diseases |
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Galaxy Tribute Funds
I have chosen my son Jason for the Galaxy Tribute as he was such a special little boy and still is very special. I have so many happy memories of him. He was so brave throughout his short life; Jason was diagnosed with propionic acidaemia when he was sixteen days old. Sadly he died on 13 March 1998, aged six but he didn’t let this stop him from living life to the full. We were told that he might never walk or talk. He did all of this. He chatted for Britain, he loved talking to people, asking them, “What you doing?” “Where you going?” “Why?” He loved to be with his brother Karl and sister Louise. Jay called me Debbie, unless he wanted something, then he’d call me Mum. But he had a funny way of saying Debbie, he seemed to echo it. Jay was such a loving little boy, loved his cuddles. He had a smile that could get him anything and he was very cheeky. He loved football and watching Barney videos. He remembered all the Barney songs. Jay is remembered by a lot of people. They always say they remember him for his smiley face and questions he used to ask. I always look at the sky and say Jay is a star. To have a star named after him will make this come true. Debbie Sutton
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