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The National Information Centre for Metabolic Diseases |
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Galaxy Tribute Funds
4th September 2004 – 1st April 2006 This Galaxy Tribute Fund is in memory of our wonderful little boy Joshua Zachary Bolton, who died very suddenly and unexpectedly on the 1st April 2006. It has subsequently been found that Joshua had undiagnosed MCADD. We could write forever about how special our little boy was to us, but words alone would never be enough to describe how truly wonderful he was and how much enjoyment, love and fulfilment he gave to our lives. Joshua was such a lively and bubbly character in everything he did or said. He was full of excitement, fun, giggles and always smiling; he was otherwise known as ‘Mr Pickle Pants’. Joshie was a very friendly, sociable and loving little boy. He would give fantastic cuddles wrapping his arms tightly around your neck and planting a lovely wet, gooey kiss on your cheek. Joshie loved other children especially his baby friends, whom he had known since he was only six weeks old and would see them each week to play. He also loved going to his nursery ‘Fledglings’ and had fun playing with the children and staff, singing songs, painting and he especially loved the sand pit. He even starred in his nursery nativity as a very cute ‘baa lamb’. Joshua was a very determined little boy, he knew exactly what he wanted to do, but was always good natured with it. This determination was especially true as to his climbing ability, he was an excellent climber and his Pompa (granddad) couldn’t wait to get him rock climbing from a very early age, just as his mummy had done. The most important time of the day was when Joshua heard daddy come home from work and special daddy and Joshie playtime and fun was had, followed by a very wet bath time and bedtime story which always had to include wonderful animal noises by Joshua. Joshie loved all his family and got very excited when his grandparents, aunty and uncles all came to visit. He loved all the attention he was given and would round them up to play with him and instruct them to “draw” handing them a crayon to join him with his picture. Joshie would get especially excited running up and down on the spot squealing with delight when his very special cousins James and Ross or as Joshie would say “ ‘ames and ‘oss” came to play with him - Joshie adored and loved them very much. Since Joshua’s death, Neil and I have struggled to comprehend that had newborn screening for MCADD been introduced nationally rather than still at the pilot stage, Joshua’s death could have been prevented as this genetic disorder is easily treatable with good prognosis if diagnosed. This galaxy tribute is in loving memory of our little boy Joshua - “like a bright star, shining forever in our hearts.” Pauline and Neil Bolton XX XX X XX XXXX
Neil and Pauline receiving their Star for Joshua at the Climb Conference. 30 September - West Bromwich
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