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Katheryn Rachael
I would like to dedicate this
Galaxy Tribute Fund in memory of my daughter, Katheryn Rachael.
Katheryn had a normal healthy
life until she reached the age of 16½, whereupon she developed a twitch in
her leg, which then developed into occasional seizures. She became
hospitalised in September 2005, when the seizures became more frequent. She
then went into status epilepticus and had to be put on a ventilator in the
intensive care unit (ICU).
She was then sent from
Leicester to the specialist Walton Centre in Liverpool. After three weeks
at Liverpool, we were told that Katheryn has some sort of mitochondrial
disorder. She was then airlifted back to Leicester as we were told they
could do no more for her than Leicester could (trying to control the
seizures the best they could). By this stage she had had 3 strokes which
left her blind.
Her boyfriend Tom proposed to
her on Christmas Day. At her best, she was happiest listening to her CDs
(The Sound of Music being her favourite). We were still at the stage
without a diagnosis. She continued to be totally hospitalised in Leicester
going in and out of intensive care until eventually, in June 2006, we got a
diagnosis of Alpers Syndrome.
The hospital kept Katheryn
comfortable whilst we looked into hospice care.
Katheryn finally passed away
peacefully on 8th July 2006 in ICU.
Rest in peace, love Dad
(Phil), sister (Becky), Tracey (step-mum) and her children and the Chapman
family (Tom and everyone).
The Galaxy Star was
presented to Phil Rachel and Tracy Osborne by Pam Davies, Family Services
manager.
In the picture from left to right are:
Tara Pender, Kayleigh
Pender, Phil Rachael,
Rebecca Rachael and
Tracey Osborne
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