National Information Centre

for Metabolic Diseases

a resource for young people, adults, families and professionals


Freephone 0800 652 3181

Supporting families,  

       Changing lives

 

 

 

 

 

  Families   Adults   Professionals   Shop  

Welcome to Climb National Information Centre for Metabolic Diseases

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Katie Francklin

    

 

A Tribute to Katie

Her pretty little face, usually covered in chocolate, her engaging cheeky grin, her soft mousey brown hair – often in bunches, her twinkly brown eyes.  That was Katie!

Katie was born on 23rd June 1992, a seemingly strong and healthy baby.  However, she failed to thrive in early infancy and after a multitude of grueling tests and much anxiety, she was eventually diagnosed with CDG type 1a, another unusual and complex metabolic syndrome.

As a family we wanted life to be as normal as possible for Katie.  She went to a special nursery group, then on to a special primary school when health permitted.  At the age of 11 she went on to St. Margaret’s School at The Children’s Trust, Tadworth, Surrey.

This is a wonderful residential school where she had the 24 hour care she required along with a multitude of therapies, her much loved enjoyment of music, hydro and rebound therapy.  It was equally an environment in which she thrived and progressed amidst much love and attention from dedicated staff and lots of friends.  Katie came home for many weekends, for half-terms and school holidays to have fun with her sister Flora and brother Jack.

It was an enormous shock when quite unexpectedly Katie died in May of this year.  During the fifteen and a half years of her life she had many ups and downs health wise, endured daily burdens – yet in spite of all this she never complained, she rarely cried, she was always smiling, always happy, radiating so much love to anyone who met her.

 As so many families know, losing a child is so very hard, somehow the more a child needs you, the more you love them – the greater the loss.  But in their different ways these special children give so much to us all – whether we are siblings, parents, grandparents, carers, medical professionals or friends – whoever we are to them, they teach us about human nature,  about the important values in our lives and so much more.

They are our shining stars and we will never forget them, and to the people and organisations such as Climb who help guide us through – THANK YOU.

 

Back to Top


 



©Copyright Climb 2012 - not to be reproduced without prior authorisation.
For problems or questions regarding this web contact webmaster@climb.org.uk
Last updated:
15 May 2012

Climb Building, 176 Nantwich Road, Crewe. CW2 6BG. UK

Climb Registered Charity No 1089588