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The National Information Centre for Metabolic Diseases |
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Galaxy Tribute Funds
Our son, Lachlan, was diagnosed with Tay Sachs in June 2005 at the age of 11 months. Our world fell apart with this news. Inevitable questions followed such as how did this happen, why us, what can we do, and where do we go next? These were the darkest days that any parent could imagine, and we struggled to put one foot in front of the other each day, let alone plan for the future. Having been blessed with our perfect son, we were devastated beyond words, angry with everyone and no one and finally, emotionally spent. However, over the following weeks and with the help of our family, our wonderful friends, and some fabulous health professionals, we slowly started to come to terms with the reality of what we had been told, and began to think about what was to come. Lachlan is getting all the love and attention he deserves, and is not short of a cuddle from a never distant Nana, Auntie or the like. He loves being out in his pushchair, and we’ve introduced him to the wide open spaces of Battersea Park in London, where he spends most of his time giggling at trees and sniffing the air. His Godmother has nicknamed him “The Park Warden” as he seems to spend most of his time inspecting what everyone else is getting up to from the comfort of his pushchair. He’s happy, and we are cherishing every moment that we have with him. He’s impatient like his dad, and beautiful like his mum. This fund is to ensure that Lachlan’s life, which has touched all those who have known and loved him, will help and comfort other families who may have to bear similar experiences. Iain and Charis Armitage
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