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The National Information Centre for Metabolic Diseases |
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Climb
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Galaxy Tribute Funds
We would like to establish a fund in memory of our little boy, Baby Sam, who should have been celebrating his first birthday on 8th April 2006, but lost his fight against a mitochondrial disease on 3rd January. We hope that fund-raising for Climb will help towards discovering treatments and cures for metabolic diseases, so others will be spared our heartbreaking loss. Sam couldn’t see smiles, but he was always smiling, and was a content little boy, who didn’t cry much. If you stroked his face, he would beam, and he found a particular game involving an enormous fake sneeze hilariously funny. Even with a feeding tube, he was particularly handsome, often admired by strangers. We shall always remember his beautiful blue eyes, long dark eyelashes and sweet little face. He was a very brave little boy. In spite of the many obstacles that the horrible disease he suffered from threw in his path, he did his absolute utmost to develop and overcome his challenges. Even in intensive care in London, he fought his hardest. When we think of Sam’s courage, we feel humbled, and our admiration for him knows no bounds. Sam was very loving, and especially close to his big sister and brother. They loved cuddling Sam and stroking his head. Sam always loved being held, and used to spend much of his time snuggled up against our shoulders or in our arms. Other things Sammy loved in life were his toy rabbit, which shared his Moses basket, his pram, which rocked him to sleep, and his thumb, which he spent most of his time sucking noisily and enthusiastically. We will remember Sam with love and pride, and we are so grateful that he was - and always will be - a special part of our family. Lysianne, Mark, Louisa and Seán Egan
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