RHIANNON’S STORY: Going to University with MCADD

Aug 01
Going from school to university can mean living independently for the first time, moving to a new town, city (or even country!), meeting lots of new people and experiencing the 'student lifestyle' of studying and partying in equal measure!  Making all of these changes when you have a medical condition

COOPER’S STORY: Living with GSD1a

Jun 20
Meet Cooper.  Cooper is a strong, three year old boy.  If you saw Cooper on the street you would not know that he battles a life threatening condition. At four and a half months old Cooper was vomiting a lot and we assumed that he had an ear infection or

MAY GUEST POST: Nutricia Metabolics

May 26
We are delighted to share another guest blog from our friends at Nutricia Metabolics! With the sun finally making an appearance, it’s time to switch your low protein lunches for something fresh and colourful - our featured recipe this month is a low protein summer salad that you can mix

FUNDRAISING: Jess’s Race Night

May 12
We love to hear about all the fantastic fundraising activities and events that are held by our amazing community.  From bake sales to wing-walking, we are constantly in awe of the efforts that people go to for Climb.  As a small team with a huge job supporting families worldwide with

FUNDRAISING: Team Climb London Marathon 2017

May 01
CONGRATULATIONS TEAM CLIMB 2017 - YOU DID IT!! On Sunday 23rd April, our 18 amazing Climb Golden Bond holders completed the London Marathon! The whole day was incredible with an electric atmosphere, and we couldn't have asked for more from Team Climb.  This fantastic, inspirational group of people spent many

TRAVEL: Susie’s Story – Our Family Holiday to Dubai with Alex (GA1)

Apr 20
We know some of the challenges that can arise with travelling when you have, or care for someone with, an Inherited Metabolic Disorder.  With the holiday season approaching, we asked some of our families to tell us of their experiences with advice and tips for planning and taking a holiday and we received some really valuable

APRIL GUEST POST: Nutricia Metabolics

Apr 15
We are delighted to share another guest blog from our friends at Nutricia Metabolics! With Easter just around the corner, we have been trying out some new springtime recipes – see our recipe of the month for the perfect addition to your Easter menu! Also this month, we are very

10 Egg-cellent Alternatives to Easter Eggs

Mar 29
Easter is just around the corner and it can be a tricky time of year for families with children that can't eat chocolate eggs.  No-one likes to feel left out, so we have searched the web and rounded up 10 of our favourite chocolate-free Easter gifts: 1.Lego Easter Chick ~

MARCH GUEST POST: Nutricia Metabolics

Mar 24
We are delighted to share the first of our monthly guest blogs from our friends at Nutricia Metabolics! Nutricia are the leading provider of medical nutrition products and a great source of dietary information and advice for families following a low protein diet.  Through their monthly guest blog, they will

KATE’S STORY: Coping with a diagnosis of MCADD

Mar 21
The fourth of August 2016 changed our lives forever.  At 04.04am Thomas Wesley Jackson was born and before we knew it we were going home that evening with our new baby.  The days that followed were scary, amazing, and sometimes overwhelming.  As first time parents we were trying and doing

DAY IN THE LIFE: Rachel Evans

Mar 21
Continuing our Day in the Life feature, giving an insight into the work we do here at Climb, and showcasing the different roles that the team performs, their aspirations, celebrations and the challenges that they face. Today we are putting our Senior Family Advisor Rachel Evans in the spotlight!  Many of you will

Rare Disease Day 2017

Mar 01
Tuesday 28th February saw the 10th annual Rare Disease Day; a day for raising awareness of the thousands of rare diseases that affect 3.5 million people in the UK alone. With the theme of research, and the slogan, 'With research, the possibilities are limitless', Rare Disease Day 2017 called for

ALISON’S STORY: Living with HHH

Jan 11
Poppy is our youngest daughter. She is a two year old little girl born on bonfire night 2013 and at Christmas 2015 she was diagnosed with Hyperornithinemia Hyperammonemia Homocitrullinuria or HHH. In the beginning Poppy developed well, putting weight on as expected. She smiled, rolled over, crawled and stood when

A-Z of Fundraising Ideas: B

Jan 05
Continuing our blog series of fundraising ideas, today is brought to you by the letter B! Whether you’re a first time or regular fundraiser we all need a little inspiration sometimes, so to give you a helping hand we are putting all of our favourite fundraising ideas together in a

DAY IN THE LIFE: Julie Kempster

Jan 05
Continuing our Day in the Life feature, giving an insight into the work we do here at Climb, and showcasing the different roles that the team performs, their aspirations, celebrations and the challenges that they face. Today we are putting our Development and Engagement Co-ordinator Julie Kempster in the spotlight! With her

SAMANTHA’S STORY: Living with GA1

Dec 02
Our daughter Beatrix was born a few days early and was 5lb 8oz. The midwives were very happy with her and we were sent home the same day. Being our first child we were very anxious and worried about all the normal things new parents do. I can remember when

Patient Guide to Contacting Members of Parliament

Nov 21
We are often contacted by patients who have been denied access to treatments from which they feel they could benefit.  Here are some practical things that you could consider doing to raise this issue and campaign for change. Contact your local MP As elected representatives in Parliament, MPs are able

9 Chocolate-Free Advent Calendars for Kids

Nov 15
With advent looming, it's time to start getting excited about opening up those 24 little windows...but what if your child can't eat chocolate? Luckily, all sorts of alternative calendars are springing up each year, with everything from candles and jewellery to coffee and pork scratchings!  We've rounded up 9 of

A–Z of Fundraising Ideas: A

Nov 02
Here at Climb HQ, we get loads of calls from lovely people who want to raise money to support us, but don’t know where to start. Whether you’re a first time or regular fundraiser we all need a little inspiration sometimes, so to give you a helping hand we are

DAY IN THE LIFE: Helen Morris

Sep 16
Welcome to our new Day in the Life feature which gives an insight into the work we do here at Climb HQ, showcasing the different roles that the team performs, their aspirations, celebrations and the challenges that they face. We're kicking off the series by putting our Research and Information Officer

FUNDRAISING: David takes on 26.2 miles for Climb

Aug 15
When I was asked if I could note some thoughts on my recent London Marathon experience (what do you mean, I haven’t mentioned it?), I initially struggled to think what would be of interest to people who would read them. But upon reflection maybe, just maybe, someone will sit there

EMILY’S STORY: Running the 2016 London Marathon for Climb

Aug 05
Emily tells us of her 2016 London Marathon experience. Let’s just say, it wasn’t as easy as I thought it would be! In June 2015, I foolishly thought that because I was able to run half marathons, that a full marathon wouldn’t be that difficult! ……..Naive, foolhardy and over confident.