Meet our Families

Raising awareness of Inherited Metabolic Disorders is one of the biggest challenges we have. With over 700 complex and varied disorders we are constantly searching for new creative ways for our families and patients to tell us what it is like to live with an Inherited Metabolic Disorder. This year we have teamed up with Same But Different to give families and patients the opportunity to have their voices heard and tell their story.

Same but Different
Same but Different

If you would like to be involved and tell your story then please contact us.