XLH Patient and Family Day – Saturday 1st July 2017

This event is now fully booked

X-Linked Hypophosphataemia (XLH) Patient and Family Meeting

Climb in collaboration with Central Manchester Healthcare Trust

Radisson Blu Airport Hotel (Manchester)
Saturday 1st July 2017
9am to 4pm

A unique and exciting event, packed with speakers discussing the latest innovations in XLH, along with opportunities to network with other families.

Agenda

09.00 – Registration
09.30 – Chair’s Welcome; Professor Zulf Mughal
09.45 – Introduction by Lindsay Weaver, Executive Director of Climb
10.00 – Professor Nick Shaw – Clinical manifestations and medical treatment of XLH in children and adolescents
10.30 – Professor Peter Selby – Clinical manifestations and medical treatment of XLH in adults
11.00 – Comfort break
11.30 – Susan Murray – Living with XLH; personal experience
12.00 – Lunch
13.30 – Dr Kay Hood – Dental manifestations of XLH
14.00 – Mr Tahir Khan – Surgical treatments  of limb deformities and fractures in adults and children with XLH
14.30 – Dr Raja Padidela – Future treatments of XLH
15.00 – Questions and Answer sessions with speakers
15.30 – Closing remarks

This event is now fully booked.  Videos of the speakers and discussions will be available following the event.